27 research outputs found

    Community Acknowledgment: Engaging Community Members in Volunteer Acknowledgment

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    Volunteers in non-profit groups are a valuable workforce that contributes to economic development and supports people in need in the U.S. However, many non-profit groups face challenges including engaging and sustaining volunteer participation, as well as increasing visibility of their work in the community. To support non-profit groups\u27 service, we explored how engaging community members in the volunteer-acknowledgment process may have an impact. We set up workstations and invited community members to write thank-you cards to volunteers in non-profit groups. We conducted 14 interviews with volunteers and community members, collected and analyzed 25 thank-you cards. We found that the acknowledgment activity can help circulate social goods through multiple stakeholders, that authenticity was valued in the acknowledgment process, and that non-profit groups intended to distribute, reuse, and publicize the acknowledgments to utilize them to a fuller extent. Our contributions include expanding knowledge on experiences, needs, and impact of community acknowledgment from different stakeholders, as well as presenting design opportunities

    Family’s health: Opportunities for non-collocated intergenerational families collaboration on healthy living

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    When a family is engaged in healthy living practices together, it enhances the quality of life for all individuals. However, when members in families are separated over distance, the everyday encouragement and support may shift and obstacles arise within the family. In this study, we investigate non-collocated family members’ practices of healthy living, their perspectives on their family’s healthy living activities, and what obstacles exist regarding collaboration on their family health. We conducted an interview study with 26 independently living participants representing “elderly parents” and “adult children” in a family dynamic. We present members’ practices and strategies for sustainable healthy living activities. We also explore members’ creative use of technology for health promotion and describe existing obstacles that prevent families to effectively collaborate in healthy living. Based on our findings, we suggest design implications to support family members living apart on their efforts to cultivate health within their families

    Making Space for Support: An Exploratory Analysis of Pandemic-Response Mutual Aid Platforms

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    The COVID-19 pandemic ushered in an era of unprecedented hardship across the United States. In response, local community members leveraged mutual aid as a form of citizen-based, peer-to-peer care. In this paper, we are interested in teasing out significant design features that support the facilitation of mutual aid on online platforms. To this end, we conducted a scenario-based claims analysis of the two most widely used platforms for mutual aid, based on three primary user groups. Our analysis suggests that design for mutual aid platforms considers features which support request standardization and balanced visibility alongside validation and conversational interaction

    Making Community Beliefs and Capacities Visible Through Care-mongering During COVID-19

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    The COVID-19 global pandemic brought forth wide-ranging, unanticipated changes in human interaction, as communities rushed to slow the spread of the coronavirus. In response, local geographic community members created grassroots care-mongering groups on social media to facilitate acts of kindness, otherwise known as care-mongering. In this paper, we are interested in understanding the types of care-mongering that take place and how such care-mongering might contribute to community collective efficacy (CCE) and community resilience during a long-haul global pandemic. We conducted a content analysis of a care-mongering group on Facebook to understand how local community members innovated and developed care-mongering practices online. We observed three facets of care-mongering: showing appreciation for helpers, coming up with ways of supporting one another\u27s needs, and continuing social interactions online and present design recommendations for further augmenting care-mongering practices for local disaster relief in online groups

    Instagram of Rivers: Facilitating Distributed Collaboration in Hyperlocal Citizen Science

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    Citizen science project leaders collecting field data in a hyperlocal community often face common socio-technical challenges, which can potentially be addressed by sharing innovations across different groups through peer-to-peer collaboration. However, most citizen science groups practice in isolation, and end up re-inventing the wheel when it comes to addressing these common challenges. This study seeks to investigate distributed collaboration between different water monitoring citizen science groups. We discovered a unique social network application called Water Reporter that mediated distributed collaboration by creating more visibility and transparency between groups using the app. We interviewed 8 citizen science project leaders who were users of this app, and 6 other citizen science project leaders to understand how distributed collaboration mediated by this app differed from collaborative practices of Non Water Reporter users. We found that distributed collaboration was an important goal for both user groups, however, the tasks that support these collaboration activities differed for the two user groups

    Using Local Community to Ease Long Haul Uncertainty During the COVID-19 Pandemic

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    The COVID-19 pandemic ushered in an era of unprecedented hardship worldwide, bringing uncertainty to new levels as people’s routines were disrupted and what was once considered normal was called into question. Citizens initiated online local communities to support information-seeking amidst the pandemic. In this paper, we explore what types of information were sought and how people engaged in uncertainty reduction with others in their area during the initial phase of COVID-19. We conducted content analysis on a pandemic-relief online local community. We found that people leveraged local networks to get updates about timely situations in local areas, clear confusion around local COVID-19 regulations, and seek confirmation on emerging social norms. However, there existed inaccurate information exchange about regulations and conflicting opinions on social norms. We provide design suggestions to increase the potentials of uncertainty management through online local communities

    Experiencing the Transition to Remote Teaching and Learning during the COVID-19 Pandemic

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    The sudden onset of the COVID-19 pandemic severely disrupted universities around the world. In the two weeks following a shelter–in-place order, all the actors of the educational system were forced to transition to remote education. This shift required a new reliance upon technologies that these individuals might never have adopted at all, often with significant difficulties. In this paper, we present a qualitative study on a university-wide survey dataset describing student and faculty experiences of abruptly transitioning to remote teaching and learning during the spring 2020 semester at the Pennsylvania State University. We performed an inductive thematic analysis to identify the challenges and opportunities that arose during the transition. Our findings contribute to building better tools, curriculum, and supports for remote education, particularly during an unexpected crisis

    Picturing One\u27s Self: Camera Use in Zoom Classes during the COVID-19 Pandemic

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    Starting from the spring of 2020, higher institutions in the US underwent a rapid shift from in-person classes to emergency remote education, in response to the COVID-19 outbreak. Under this circumstance, a variety of video conferencing tools (e.g., Zoom) have been adopted for distance education, which pose a set of new challenges arising from synchronous online classes. Among these, one significant issue was students\u27 unwillingness to open cameras, resulting in a lack of non-verbal cues that instructors could rely on to gauge students\u27 understanding and adjust their teachings. Towards addressing this issue, our qualitative study aims at investigating the rationales behind students\u27 camera avoidance. Through a series of semi-structured interviews on undergraduate students in the U.S, we identified prominent factors -- namely the class size, lecture style, level of interactivity and privacy concerns -- that influenced students\u27 motivation for opening their cameras. At the same time, we uncovered several difficulties, such as heightened self-awareness, feeling of minority and academic perspective, that discouraged students from opening camera, with more substantial impacts on international students. We conclude with actionable insights into the design of online classes, video-conferencing platforms and camera technology that can promote camera usage, thereby contributing to scalable and inclusive interventions for facilitating the transition into remote education

    The Genetic Signatures of Noncoding RNAs

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    The majority of the genome in animals and plants is transcribed in a developmentally regulated manner to produce large numbers of non–protein-coding RNAs (ncRNAs), whose incidence increases with developmental complexity. There is growing evidence that these transcripts are functional, particularly in the regulation of epigenetic processes, leading to the suggestion that they compose a hitherto hidden layer of genomic programming in humans and other complex organisms. However, to date, very few have been identified in genetic screens. Here I show that this is explicable by an historic emphasis, both phenotypically and technically, on mutations in protein-coding sequences, and by presumptions about the nature of regulatory mutations. Most variations in regulatory sequences produce relatively subtle phenotypic changes, in contrast to mutations in protein-coding sequences that frequently cause catastrophic component failure. Until recently, most mapping projects have focused on protein-coding sequences, and the limited number of identified regulatory mutations have been interpreted as affecting conventional cis-acting promoter and enhancer elements, although these regions are often themselves transcribed. Moreover, ncRNA-directed regulatory circuits underpin most, if not all, complex genetic phenomena in eukaryotes, including RNA interference-related processes such as transcriptional and post-transcriptional gene silencing, position effect variegation, hybrid dysgenesis, chromosome dosage compensation, parental imprinting and allelic exclusion, paramutation, and possibly transvection and transinduction. The next frontier is the identification and functional characterization of the myriad sequence variations that influence quantitative traits, disease susceptibility, and other complex characteristics, which are being shown by genome-wide association studies to lie mostly in noncoding, presumably regulatory, regions. There is every possibility that many of these variations will alter the interactions between regulatory RNAs and their targets, a prospect that should be borne in mind in future functional analyses

    Elective cancer surgery in COVID-19-free surgical pathways during the SARS-CoV-2 pandemic: An international, multicenter, comparative cohort study

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    PURPOSE As cancer surgery restarts after the first COVID-19 wave, health care providers urgently require data to determine where elective surgery is best performed. This study aimed to determine whether COVID-19–free surgical pathways were associated with lower postoperative pulmonary complication rates compared with hospitals with no defined pathway. PATIENTS AND METHODS This international, multicenter cohort study included patients who underwent elective surgery for 10 solid cancer types without preoperative suspicion of SARS-CoV-2. Participating hospitals included patients from local emergence of SARS-CoV-2 until April 19, 2020. At the time of surgery, hospitals were defined as having a COVID-19–free surgical pathway (complete segregation of the operating theater, critical care, and inpatient ward areas) or no defined pathway (incomplete or no segregation, areas shared with patients with COVID-19). The primary outcome was 30-day postoperative pulmonary complications (pneumonia, acute respiratory distress syndrome, unexpected ventilation). RESULTS Of 9,171 patients from 447 hospitals in 55 countries, 2,481 were operated on in COVID-19–free surgical pathways. Patients who underwent surgery within COVID-19–free surgical pathways were younger with fewer comorbidities than those in hospitals with no defined pathway but with similar proportions of major surgery. After adjustment, pulmonary complication rates were lower with COVID-19–free surgical pathways (2.2% v 4.9%; adjusted odds ratio [aOR], 0.62; 95% CI, 0.44 to 0.86). This was consistent in sensitivity analyses for low-risk patients (American Society of Anesthesiologists grade 1/2), propensity score–matched models, and patients with negative SARS-CoV-2 preoperative tests. The postoperative SARS-CoV-2 infection rate was also lower in COVID-19–free surgical pathways (2.1% v 3.6%; aOR, 0.53; 95% CI, 0.36 to 0.76). CONCLUSION Within available resources, dedicated COVID-19–free surgical pathways should be established to provide safe elective cancer surgery during current and before future SARS-CoV-2 outbreaks
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